View Article  The Son-Rise Start-Up Program

As some of you know, I'm currently attending the start-up Son-Rise program in NYC. All I can say is that the appoach is incedibly life-affirming, empowering, and effective for autistic children and their families.

What I'm seeing during this week is that each morning parents are coming back happier, with reports of surprising progress in terms of eye contact, connection with their child, and feelings of empowerment and enjoyment of their children. Of course it differs for each child, but many parents are surprised at these quick changes their children are making literally overnight, with just a few simple changes. Just speaking for myself, I saw an increased intensity of eye contact and connection with my son, and an increased desire to seek me out just after doing the changes for about a half hour. It gets you close to you child faster than anything else I've experienced.

Son-Rise has some similarities here and there to some other interventions I've experienced, but it differs in a few aspects -- the child is seen as a gift and not someone that needs to be fixed, yet opportunities are constantly given for growth. Expecations of the potential for each child are extremely high, compared to what we've all been told, regardless of age or diagnosis. There is an incredible acceptance and respect for the whole child and the entire family. Also, nothing is forced on the child, and apparently this level of respect and acceptance gets initial results very quickly for many children.

The intervention philosophy and style may be strange for some, because it all starts by accepting the child totally, including their autism, and joining the child fully by participating in their "stimming" behaviors without trying to stop them or redirect them. This is not done to manipulate, but rather, to fully appreciate, enjoy, and engage with your child by accepting them as they are. Then as opportunities present, the child is gently challenged more and more to expand their awareness, flexibility, frienship skills, communication, and knowledge. Everything at the beginning is based on trusting your child to lead and teach you, and then as time goes on, the parent takes more and more of the lead in the interaction.  

I can see this intervention used throughout a child's program, and I think that you can creatively use it in conjunction with some other interventions as well, such as RDI and speech, etc. With RDI, I can see it as really helping to smooth out the transition in some of the early stages. And I can also see it as a much more organically easy way to do a program such as RDI, by being able to let go and allow some of those goals to happen more naturally.

I don't think that this program conflicts with behavioral philosophy, but it does conflict with most present-day behavioral programs. What I mean is that I can see Son-Rise definitely uses some basic behavioral principles in some of what they do, but the difference is in what they're trying to accomplish -- (creating a happy independent adult with relationships, self-acceptance and self-esteem), the accepting attitude behind it, and the emphasis on social and communication outcomes that are truly important long-term, rather than on short-term fixes or compliance issues.

The family and child's self-esteem and happiness is put first in this intervention. It's a healing balm for the spirit of a family that's been challenged by autism. I highly recommend it, and hope that all families with an autistic child or adult might have an opportunity to experience the Son-Rise program for themselves one day.

http://www.autismtreatmentcenter.org/

-- Sandra Sinclair, www.autismvoice.com

View Article  A Friend Finder Program for Parents of Children with Autism.

Would you like to find other parents of children on the spectrum in your community to make friends and lend support to one another? I saw this article in WebWire about a Friend Finder program through AutismKey.com:

 

Autism Support Website Launches Friend Finder Program

AutismKey.com
6/7/2006 3:49:41 PM

June 7, 2006 –- As autism prevalence rates continue to rise nationwide, there has been an ever-growing demand for support at the local level. Parents, family members and caregivers of autistic children are often turning to others in their community for support and friendship.

For this reason, Autism Key (http://www.autismkey.com ) has announced the launch of their Autism Friend Finder program. This unique system will allow visitors to submit basic contact information through a web based portal. The data will then be shared with anyone residing within a 35 mile radius of their postal zip code. The information will allow individuals facing similar challenges to connect with others in their community.

“Local support is critical for parents and family members facing these disorders,” said Gary Greaves, webmaster and operator of AutismKey.com.

“Some of our best friends are other parents of children with special needs. Lifelong friendships are often formed with others who understand your challenges. With this program, I wanted to create a vehicle where users can connect with people in their own back yard,” he added.

The program is free of charge and only requires a first name, valid email address and zip code. Optional options also allow users to provide more detailed information.

Greaves, who is the father of an autistic child, says the idea for the program was hatched from requests he received through his website.

“People emailed me wanting to locate others in their area. I thought this would be a great way for parents and family members to get connected if they’re not currently plugged into a local support group or autism chapter.”

“Additionally, with the school year coming to an end, many parents are looking for summer programs and activities for their children. Participation in the Autism Friend Finder program can be a valuable resource to learn about different things to do for the summer,” he added.

Autism Key is a website that also provides resources, news, message boards and support. More information is available on conditions such as Asperger Syndrome, Fragile X, Hyperlexia and other Autism Spectrum Disorders.

To learn more or to enroll in the Autism Friend Finder program, visit http://www.autismkey.com

Contact Information:

Gary Greaves
Owner, AutismKey.com
561-716-5732
contact@autismkey.com

Article courtesy of WebWire

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View Article  What a Wonderful World We Can Create!

I received this story below in an email today, and I thought it was  most beautiful. I wish I knew who wrote it, but it was a forwarded story. I printed it here in entirety, even the post script note about forwarding it on, since that is the reason for the story. What a beautiful world this could be if we all lived like this...

 

Remember children do what is in their hearts without any hesitation.  This is why we all can learn from children. 

 

You make the choice. Don't look for a punch line. There isn't one. Read it anyway. My question to all of you is: Would you have made the same choice?

At a fund-raising dinner for a school that serves learning disabled children, the father of one of the students delivered a speech that would never be forgotten by all who attended. After extolling the school and its dedicated staff, he offered a question.

"When not interfered with by outside influences, everything nature does is done with perfection. Yet my son, Shay, cannot learn things as other children do. He cannot understand things as other children do. Where is the natural order of things in my son?"  The audience was stilled by the query.

The father continued. "I believe that when a child like Shay comes into the world, an opportunity to realize true human nature presents itself, and it comes, in the way other people treat that child."

Then he told the following story: Shay and his father had walked past a park where some boys Shay knew were playing baseball.   Shay asked, "Do you think they'll let me play?"  Shay's father knew that most of the boys would not want someone like Shay on their team, but the father also understood that if his son were allowed to play, it would give him a much-needed sense of belonging. Shay's father approached one of the boys on the field and asked if Shay could play.

The boy looked around for guidance and, getting none, took matters into his own hands and said, "We're losing by six runs and the game is in the eighth inning. I guess he can be on our team and we'll try to put him in to bat in the ninth inning."


In the bottom of the eighth inning, Shay's team scored a few runs but was still behind by three. In the top of the ninth inning, Shay put on a glove and played in the outfield. Even though no hits came his way, he was obviously ecstatic just to be in the game and on the field, grinning from ear to ear as his father waved to him from the stands.

In the bottom of the ninth inning, Shay's team scored again. Now, with two outs and the bases loaded, the potential winning run was on base and Shay was scheduled to be next at bat.

At this juncture, let Shay bat and give away their chance to win the game?


Surprisingly, Shay was given the bat. Everyone knew that a hit was all but impossible 'cause Shay didn't even know how to hold the bat properly, much less connect with the ball. However, as Shay stepped up to the plate, the pitcher moved in a few steps to lob the ball in softly so Shay could at least be able to make contact.


The first pitch came and Shay swung clumsily and missed. The pitcher again took a few steps forward to toss the ball softly towards Shay. As the pitch came in, Shay swung at the ball and hit a slow ground ball right back to the pitcher. The pitcher picked up the soft grounder and could have easily thrown the ball to the first baseman. Shay would have been out and that would have been the end of the game.

Instead, the pitcher took the ball and turned and threw the ball on a high arc to right field, far beyond the reach of the first baseman.


Everyone started yelling, "Shay, run to first! Run to first!"
Never in his life had Shay ever made it to first base. He scampered down the baseline, wide-eyed and startled.

Everyone yelled, "Run to second, run to second!"

By the time Shay rounded first base, the right fielder had the ball. He could have thrown the ball to the second-baseman for the tag, but he understood the pitcher's intentions and intentionally threw the ball high and far over the third-baseman's head.    

Shay ran toward second base as the runners ahead of him deliriously circled the bases toward home. Shay reached second base, the opposing shortstop ran to him, turned him in the direction of third base, and shouted, "Run to third!"

As Shay rounded third, the boys from both teams were screaming, "Shay, run home!"

Shay ran to home, stepped on the plate, and was cheered as the hero who hit the "grand slam" and won the game for his team.

"That day," said the father softly with tears now rolling down his face, "the boys from both teams helped bring a piece of true love and humanity into this world."

AND, NOW A LITTLE FOOTNOTE TO THIS STORY: We all send thousands of jokes through the e-mail without a second thought, but when it comes to sending messages about life choices, people think twice about sharing.

If you're thinking about forwarding this message, chances are that you're probably sorting out the people on your address list that aren't the "appropriate" ones to receive this type of message. Well, the person who sent you this believes that we all can make a difference. We all have thousands of opportunities every single day to help realize the "natural order of things." So many seemingly trivial interactions between two people present us with a choice: do we pass along a little spark of love and humanity or do we pass up that opportunity, and leave the world a little bit colder in the process?

I leave you with two choices:
1. Delete this.
2. Forward it to the people you care about. You already know the choice I opted for.

Friends are quiet angels who lift us to our feet when our wings have trouble remembering how to fly.

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View Article  This Joke Goes Deeper Than it Seems...

This is just a quick random thought...I ran across this tonight, on the Guide to Midwestern Culture blog. Even though it's not about autism, it really made me think about all the statistics and notes written about our children from day to day, especially during therapy. 

Do all those stats actually translate into real competence? We've got to look past it all and deeply observe our children for that answer. I'm talking a lot of different levels here... 

  

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