Autismvoice Support Group

Welcome to the Autismvoice Support Group for parents and family members of children with autism spectrum disorders.

Our group meets on the phone 2 times a month, on Wednesdays, 7pm eastern standard time.

We discuss various topics, such as interventions, advocacy, family, day-to-day challenges, and many other aspects of life with autism.

The goal of our group is to improve the quality of life for our families and ourselves by sharing our experiences, information, and ideas with one another.

You are welcome to join. Come and visit and enjoy. By subscribing, you will receive notices by email for upcoming calls with call-in info, including date, time, phone number and access code.


 


There is no charge for joining this group. However, you will incur your normal long distance charges for the duration of the call with your long distance carrier.  

Trackback Spamming

I'm sorry everyone who had to see the trackback links that were so awful. Apparently about 4 days ago, someone spammed my blog with all kinds of rude and terrible things and set trackback links back to their website. I think I've removed all of them and have blocked the sender. I'm also considering having no more trackbacks available to my blog if it happens again. Sorry for the vulgarity, everyone. — Sandra Sinclair

 

What is Aspergers?

There is a lot of curiosity as to the difference between Aspergers and PDD-NOS. This link goes to a page at the Autism Society of America, explaining what Asperger's Syndrome is:

http://www.autism-society.org/site/PageServer?pagename=Aspergers

And if you want to see the DSM IV diagnostic criteria for diagnosing Aspergers, here is the link. Scroll down to see the Asperger's diagnosis criteria specifically:

http://www.autismvoice.com/blog/SignsofAutismDiagnosis

Sandra Sinclair,

www.autismvoice.com

What is Autism? The Core Deficit in Autism Spectrum Disorders

There seems to be a lot of confusion as to what autism and autism spectrum disorders actually are. It's understandable, because persons on the autism spectrum can be so individually different. Some cannot talk. Some talk early. Some are highly intelligent, others have some degree of  mental retardation. Some have extreme sensory issues and some don't. Some have motor planning problems, and some are very athletic. And the list goes on. So with all of these differences between individuals, what do these people have in common?

 

Regardless of diagnosis – Asperger's Syndrome, PDD, PDD-NOS, Autism or any other autism spectrum disorder, what all persons with autism spectrum disorders seem to have in common is their core deficit.

 

Autism spectrum disorders arise from a neurological condition; a weakened area that seems to be located somewhere along the pathway that runs from the prefrontal cortex to the hippocampus of the brain. No one yet knows definitively what causes this condition. All individuals on the autism spectrum have this weakened pathway, which results in the following core deficits:

 

Deficits in: comparative thought and interpretation, flexibility and adaptability to change, creative thought, decision-making, judgment, and memory of past positive feelings about events. 

 

In typical individuals, this pathway creates a hierarchy of comparison, and interprets everything we see, hear, do and feel. It compares one thing to another, compares past to present situations, compares how we felt before to now, separates important from the unimportant, and then uses all of that information to judge situations and come up with with unique solutions.

 

Typical people spend most of the day using this part of their brain effortlessly, sailing through thousands of little moment-to-moment decisions with ease. But for a person on the autism spectrum, all of those tiny moment to moment decisions can be quite difficult and often scary.

 

Because of the weakened brain pathway, individuals on the autism spectrum have a limited ability to compare, interpret and solve new situations. As a result, they remain tied to using solutions they already know, and have limited ability to deal with new or changing situations.

 

Decision-making and judgment abilites that most of us take for granted, such deciding which way to go to the store today, interpreting and understanding the actions of other people, or even figuring out how near or far to walk next to someone often cause confusion and fear in a person with an autism spectrum disorder. 

 

As a result, the world often seems chaotic and scary to individuals on the spectrum, and other people seem to act in abrupt and unexpected ways that are just impossible for them to understand.

 

To try to control some of this chaos and keep things predictable, autistic individuals tend to rely heavily on formulas and repetitive sequences to get through their day.

 

These sequences and formulas rely on a different part of the brain that usually functions quite well in persons on the autism spectrum. It's the area of the brain that runs our “red = stop, green = go”, “2+2=4″ type thinking – very formulaic, very predictable , and very absolute thought. Unfortunately, this area of the brain is unable to compare, interpret, adapt, or see possiblities.

 

Of course when faced with new or changing situations, when most formulas won't work, persons on the spectrum often fall apart, out of fear of the unknown. Most of the tantrums, escape, or aggressive behaviors that we see at these times are usually “fight or flight” responses, motivated out of fear, not from being stubborn, manipulative or “bad”.

 

One of the reasons Relationship Development Intervention is effective is because it addresses this pathway directly, by using different activities to exercise and strengthen it, much like what we do for other persons with weak or damaged brain pathways, such as persons with stroke or head injury, etc.

 

For more information about Relationship Development Intervention, visit http://www.rdiconnect.com. You can also read my article on RDI or listen to the podcast “What is RDI?” – Sandra Sinclair, www.autismvoice.com

 

 This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 2.5 License.

Managing Tantrums and Difficult Behaviors in Autism – When Consistency Doesn't Work…

 

- Sandra Sinclair, www.autismvoice.com

Managing Tantrums and Difficult Behaviors in Autism – When Consistency Doesn't Work…

For the podcast on this topic: part 1 and part 2

 

 

When dealing with tantrums and difficult behaviors in autism spectrum disorders, using behavioral approaches alone can sometimes fail. What is the missing piece to managing these behaviors that a behavioral approach alone may not address?

 

 

To start, we need to look at the reasons for behavior. According to behavioral approaches, most of the behavior we see results from one of three reasons: a request, seeking attention, or a sensory reason. Let’s look deeper at these three reasons for behavior and the ways we currently handle them.

 

 

 

Handling a request is fairly straightforward. To put it very simply, a request is usually something externally controlled by both reinforcing appropriate requests and not reinforcing inappropriate ones, such as a tantrum.

 

 

 

For negative attention-seeking behaviors, we can eliminate the behavior by not giving the negative behavior attention and give attention for desired behavior – very straightforward, and again, usually externally controlled. 

 

 

 

The sensory reasons arise from both the external and internal events that a child experiences through the five senses, and may or may not be externally controlled. 

 

 

 

In all of these situations, our internal responses – our feelings and thoughts about events fire us into action. In stressful situations, the resulting “knee jerk reactions, are often difficult to manage with a purely behavioral approach for a few reasons:

 

 

 

1. Thoughts and feelings are often lightning-fast, internally-controlled events, therefore difficult to manage through external behavioral modifications.

 

 

 

2. Thoughts and feelings can’t be measured, and as a result, behavioral approaches simply don’t address them. It doesn’t mean that these things don’t exist or aren’t important. It just means that they’re left out of the equation.  

 

 

 

3. Behavioral approaches address the cause and consequence of  behaviors – the beginning and the end. But internal responses (ie thoughts and feelings) happen in the moments between the cause and the consequence. By not dealing with thoughts, feelings and solutions at these moments, we leave a child to figure out solutions on his or her own.

 

 

 

4. Children on the autism spectrum have a limited ability to adapt to new or changing situations, solve problems, compare past to present, or see possibilities. Because of this, if a child never learns how to think through a challenging situation during the emotional moments, when faced with it again, the same behavior will probably repeat itself, no matter what the consequence, or how many times they’ve been through it before.

 

 

 

This situation calls for tools to deal with overwhelming thoughts, feelings and strategies in the moment before the tantrum, not just consequences after.

 

 

 

In the book The Explosive Child , Ross Greene talks about this situation. This book applies to any disorders that have limitations in problem solving and executive thought, including all PDD’s, including Asperger’s Syndrome, PDD-NOS, and all autism spectrum disorders, ADD, ADHD, and various other developmental disabilities.

 

 

In the book, first we pick our battles carefully, and then talk through our thought process out loud. This way our children can hear us think through situations before tantrums. This also creates a memory of how they triumphed in the situation without resorting to negative behaviors.

 

 

 

Progress is made in small increments, but as time goes on, tantrums should decrease, and you can even start to ask your child to contribute ideas about solving problems during those emotional moments. In doing this, you help your child learn how to solve problems and become confident about handling new, changing, or challenging situations. You’ll combine the best of all worlds, to the benefit of your child.

 

- Sandra Sinclair, www.autismvoice.com

 


This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 2.5 License.

Tantrums & Difficult Behavior, part 1

MP3 File

Tantrums and undesirable behavior are common problems for children on the spectrum. Why is it that sometimes behavioral strategies work, and sometimes they don't in turning these behaviors around? What is the missing piece from the behavioral approaches that, once put in place, could change the outcome for our children?- Sandra Sinclair, www.autismvoice.com

This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 2.5 License.